Regular engagement with patients participating in registries is key to ensuring they continue to participate in long-term follow-up about a disease’s progression or the effectiveness of a treatment, leaders of patient advocate groups who have created effective registries said this week. The advice comes as FDA officials struggle with how to keep patients in registries and are looking at possible incentives. The topic was discussed at a workshop hosted by FDA and the Reagan-Udall Foundation Monday (May 13) that focused...